SCHULTZ FAMILY FOUNDATION SUPPORTS ONE MIND AND PATIENTSLIKEME PARTNERSHIP TO ASSIST VETERANS WITH POST-TRAUMATIC STRESS AND TRAUMATIC BRAIN INJURY
Collaboration Will Uncover Real-World Experiences, Generate Patient Data That Improves Daily Living and Overall Understanding of Conditions of Veterans
Posted on July 22, 2014
SEATTLE, WA – July 22, 2014 – One Mind and PatientsLikeMe announced a new multi-year collaboration on June 12, 2014 to help the millions of people worldwide – many of them U.S. veterans of recent wars – who are experiencing post-traumatic stress (PTS), traumatic brain injury (TBI), or both. As part of the collaboration, the two organizations will develop and launch a first-of-its-kind online community targeting veterans challenged with PTS and TBI. This partnership is sponsored by the Schultz Family Foundation, which recently committed $30 million to launch Onward Veterans, an initiative dedicated to supporting successful transitions for post-9/11 veterans.
This new online community will enable veterans struggling with PTS and TBI to track their conditions, and share experiences and learning regarding how to best manage their conditions, while capturing and using more patient-reported data to advise research and treatment.
Building on the headway One Mind has made in seeking out real solutions for patients, One Mind CEO, General Pete Chiarelli, U.S. Army (Retired), said the collaboration will address longstanding issues for people with all forms of PTS and TBI. “We’re decades behind in our understanding of these conditions. We have an amazing ability to save soldiers on the battlefield, but we don’t do a good job addressing their invisible wounds. And we prescribe a mix of off label drugs because nothing has been developed specifically for their condition. We need to look to the future to improve outcomes and lives, and this innovative partnership will do just that.”
Almost 8 % of adult Americans will experience PTS at some point in their lives, according to psychologist R.C. Kessler's findings from The National Comorbidity Survey Report (NCS). Veterans, victims of sexual assault and others who have experienced a traumatic event may also develop PTS.
TBI is broadly defined as an alteration in brain function or other evidence of brain pathology caused by an external force that can occur at home, at work, during sports activities, or on the battlefield. The Center for Disease Control and Prevention reported that there are at least 2.5 million emergency department visits, hospitalizations, or deaths related to TBI across the country, and that the leading causes of TBI are from accidents, sport-related injuries or other incidents.
PatientsLikeMe Co-founder and Chairman Jamie Heywood stated that, “Our partnership with One Mind and the individuals dealing with PTS and TBI will provide insights about effective treatments from people in the real world, and drive new understanding about gaps in care.”
One Mind is also supporting multi-center clinical studies called TRACK-TBI and CENTER-TBI, which will follow thousands of TBI patients over three years. Both studies enroll patients within 24 hours of their injury, and are focused on improving treatments through developing new diagnostics tools such as imaging protocols and biomarkers.
One Mind and PatientsLikeMe are actively seeking nonprofit and other partners to grow the online community and learn together about people’s real-world experiences. People living with any form of PTS or TBI can join fellow members of the PatientsLikeMe community today to become early users of the site and provide feedback on future customizations for the community. Go to www.patientslikeme.com for further information.
About One Mind
One Mind is an independent, 501(c)(3) non-profit organization dedicated to benefiting all affected by brain illness and injury through fostering fundamental changes that will radically accelerate the development and implementation of improved diagnostics, treatments, and cures; while eliminating the stigma. One Mind believes in open science principles and creates global public-private partnerships between governmental, corporate, scientific, and philanthropic communities. Visit us at www.onemind.org or follow us via Twitter or Facebook.
About the Schultz Family Foundation
Since 2000, the Schultz Family Foundation has partnered with and sponsored organizations that unlock potential in populations facing temporary barriers to success. The foundation launched two initiatives focused on youth and veterans called Onward Youth and Onward Veterans. The foundation’s Onward Veterans initiative, is dedicated to supporting successful transition and reintegration of post-9/11 veterans. Visit us at http://www.schultzfamilyfoundation.org.
PatientsLikeMe® (www.patientslikeme.com) is a patient network that improves lives and a real-time research platform that advances medicine. Through the network, patients connect with others who have the same disease or condition and track and share their own experiences. In the process, they generate data about the real-world nature of disease that help researchers, pharmaceutical companies, regulators, providers, and nonprofits develop more effective products, services and care. With more than 250,000 members, PatientsLikeMe is a trusted source for real-world disease information and a clinically robust resource that has published more than 40 peer-reviewed research studies. Visit us at www.patientslikeme.com or follow us via our blog, Twitter or Facebook.
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