One Mind has partnered with PatientsLikeMe (PLM), a pioneer in building and engaging outcomes-based online patient communities, to create a customized world-class experience for members living with post-traumatic stress (PTS) and traumatic brain injury (TBI).
The website is used by people with chronic conditions, allowing them to connect and share with others, and provide their health data if they choose, while the user-driven analytical platform delivers value through sophisticated statistical-based means. Clinicians and researchers also use the site to track and better understand the patient experience.
Feel free to take the community tour below.
The value in working together
The primary goal of this partnership is to support the individual patient and/or caregiver by providing better resources for day-to-day living within the PTS and TBI online communities. Patients are able to connect with others who have the same disease or condition, learn about living with and treating life-changing conditions, and track medications and other health-related activities to make it easier for them to manage their care in partnership with physicians and other healthcare professionals.
These online communities will also generate a significant amount of patient-reported qualitative and quantitative data. With user permission, the data will be captured and analyzed by dedicated research teams to uncover more effective products, services and care around PTS and TBI.
What are the results so far?
Patients reported on how their PTS and/or TBI symptoms impacted their daily lives.
Patients reported on why they seek or do not seek treatment for their PTS.