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One Mind

2014 ONE MIND summit


May 13-15 | Arlington, VA                                                                                        



Unlike past Summits, the 3rd Annual One Mind Summit discussion had a singular focus — Accelerating Open Science: Reengineering the Incentive System.

130 participants, including 32 renowned speakers and panelists, came together to address barriers and incentives to sharing data.

The goal was to examine how current systems for recording, storing and sharing data could be reengineered to make them more useful for sharing and for integration into meta-analyses and other “big data” projects that will advance knowledge.

Specific attention was given to informed consents, patient and IRB concerns over privacy and security of their personal data, national and international data regulations, intellectual property policies, academic incentives for advancement, publishing models, the goals of grant-making bodies and the pressing issue of the replicability of research.

Based on the Summit discussions, we promised to propose and publish consensus next steps for further action — with the needs of the patient as the guiding principle.

A big thank you goes out to our moderator, Stephen Johnson. The
 tremendous success of the summit was greatly contributed by Stephen. We also appreciate the deep research and planning he put in before the program - it was clear and paid off.

DAY 1 I TUESDAY, MAY 13, 2014
12:45-12:55 pm
Garen Staglin, Co-Founder & Co-Chairman, One Mind

12:55-1:30 pm
CEO Update: One Mind Open Science Principles
General Peter Chiarelli, U.S. Army (Retired), Chief Executive Officer, One Mind

1:30-2:00 pm
Why Do We Need to Change?
Thomas Kalil, Deputy Director for Technology and Innovation, The Whitehouse Office of Science & Technology Policy

2:00-3:00 pm
What Are the Academic and Other Disincentiveto Data Sharing and Are There Realistic Solutions?
Dr. Christopher Austin, Director, National Center for Advancing Translational Sciences, NIH
Dr. William Chin, Executive Vice President, Science and Regulatory Affairs, PhRMA
Dr. Michel Goldman, Executive Director, Innovative Medicines Initiative
Dr. Geoffrey Manley, Professor and Vice Chairman of Neurological Surgery, University of California, San Francisco

3:30-4:30 pm
Re-Engineering Publication Policy and the Dissemination of Scientific Knowledge
Dr. Véronique Kiermer, Director of Author and Reviewer Services, Nature Publishing Group
Elizabeth Marincola, Chief Executive Officer, Public Library of Science
Dr. Maryann Martone, Professor-in-Residence, Department of Neuroscience, University of California, San Diego
Dr. Shai Siberberg, Program Director, Extramural Research Program, National Institute of Neurological Disorders and Stroke, NIH

4:30-5:30 pm
Roundtable Discussion with Members of Both Panels

8:15-8:30 am                
Honorable Patrick J. Kennedy, Co-founder, One Mind

8:30-10:00 am             
Technological Solutions to Data Sharing
Dr. Jeffrey Grethe, Associate Director, Center for Research in Biological Systems, University of California, San Diego
Dr. Magali Haas, Founder and CEO, Orion Bionetworks
Dr. Sean Hill, Scientific Director, International Neuroinformatics Coordinating Facility
Dr. Shiva Kumar, Vice President, Strategy and Enterprise Initiatives, IBM

10:30-12:00 pm             
Bayh-Dole – Unintended Consequences and Proposed Solutions
Robi Blumenstein, President, CHDI Management
Dr. Robert Cook-Deegan, Senior Fellow, Faster Cures and Research Professor, Genome Ethics, Law & Policy, Duke Institute for Genome Sciences & Policy
Lita Nelsen, Director, Technology Licensing Office, MIT
Arti Rai, Elvin R. Latty Professor of Law and Co-Director, Duke Law Center for Innovation Policy, Duke University School of Law

1:00-1:30 pm                 
Honorable Chaka Fattah, Congressman, U.S. House of Representatives

1:30-2:45 pm 
Privacy Regulation, Patient Engagement and Patient Consents-Creating Sustainable Systems for Patient and Researcher
Amy Comstock Rick, CEO, Parkinson’s Action Network
Hazel Grant, Partner, Bristows
James Heywood, Chairman and Co-Founder, PatientsLikeMe
Dr. Bradley Malin, Associate Professor and Vice Chair of Biomedical Informatics, Associate Professor of Computer Science, School of Medicine and School of Engineering, Vanderbilt University
Kristen Rosati, Shareholder, Polsinelli
Dr. David Shern, Senior Science Advisor, Mental Health America
Dr. Don Stuss, President and Scientific Director, Ontario Brain Institute
John Wilbanks, Chief Commons Officer, Sage Bionetworks

3:15-5:00 pm                 
Panel Continues

DAY 3 I THURSDAY, MAY 15, 2014
8:15-10:30 am
Research Funders-Grant Criteria and Grant Governance
Dr. Philip Bourne, Associate Director for Data Science, NIH
Dr. Thomas Insel, Director, NIMH, NIH
Bron Kisler, Vice President, Strategic Initiatives, CDISC
Dr. Jeffrey Lieberman, Professor and Chairman, Department of Psychiatry, Columbia University College of Physicians and Surgeons
Denis Wirtz, Vice Provost for Research, Johns Hopkins University

11:00-12:00 pm
What Could a Reengineered Incentive System Look Like?
Stephen Johnson, Chief Intellectual Property and Policy Officer, One Mind
George Goldsmith, Chairman and Founder, Tapestry Networks

12:00 pm

We are also very grateful to our sponsors who made the event possible and look forward to working with everyone to turning the proposals from the Summit into reality.


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